This week, we signpost a survey from the Pistoia Alliance about efforts to implement FAIR principles. We read three articles exploring equity in healthcare research and data sharing, broadening access to both patients and more widely across the world. Finally, we delve into the implications of copyright licensing for AI platforms and what this means for the future.
To engage with:
Share your FAIR implementation story via Pistoia Alliance
The Pistoia Alliance has launched a survey that aims to collect case studies demonstrating the business value of implementing FAIR principles. These principles aim to make resources findable, accessible, interoperable and reusable. The FAIR Community of Experts hopes to use the insights gained from the survey to generate resources for the wider community. More information about the Pistoia Alliance’s initiative can be found here. The survey will remain open until the end of August.
To read:
Celebrating 10 years of widening patient participation in healthcare via the BMJ | 9-minute read
The BMJ is celebrating 10 years of its patient and public partnership strategy. The strategy identifies four major ways in which patients and the public can get involved in healthcare research: as authors, as reviewers, by contributing to research design and as members of journal editorial boards. However, the authors recognize that funding remains a major barrier to patient and public involvement, and they emphasize the importance of funding on a case-by-case basis rather than using a blanket approach.
Bridging language gaps to make global health equitable via PLOS Blogs | 5-minute read
In this article, Yap Boum II (Executive Director at the Institut Pasteur de Bangui) uncovers the hidden problems behind the increasingly global nature of scientific communication and the inequities posed by language barriers for many scientists. Professor Boum II suggests allowing scientists to exchange ideas and publish in their native language. Through driving the impetus for more inclusivity in the global health community, this also embraces the significance of different cultural perspectives for equity in global health.
The POWER of data sharing via Center for Open Science | 4-minute read
Providing Opportunities for Women in Education Research (POWER) was established to connect, support and advocate for women and non-binary researchers through various initiatives, including the development of specialized hubs. The Data Management Hub, founded in January 2022 by Crystal Lewis (author of Data Management in Large-Scale Education Research) provides a nexus for members of POWER and also develops open access resources for use by the wider research community.
Balancing AI platforms with copyright law via Copyright Clearance Center | 3-minute read
How will artificial intelligence (AI) platforms navigate the tricky waters of copyright law? In July 2024, the Copyright Clearance Center included AI reuse rights within its Annual Copyright Licenses. This represents the first ever licence for the use of copyrighted materials in internal AI systems. With the recent rapid advancements in the use of AI in research, copyrighted content must be protected to encourage authors to continue to provide meaningful resources. This not only incentivizes further creativity but also acknowledges the reliance of AI systems on the original works of the rightsholders.
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